Sunday, November 20, 2016

Let's Talk About Suicide





The last week or so, a post has been trending on facebook. It goes something like:

"Hey, I'm trying to prove a friend wrong, if
I can get 3 people to repost this to show that
people really do care." #suicideawareness

Or something like that. I appreciate the effort. I'm not sure exactly what reposting a post is supposed to prove because when you're in a life or death situation, a memory of who posted what a few months ago, will not be there. I have 200 something friends and I can count on one hand the number of people I would contact if I were suicidal. Not that the other friends don't matter or I don't trust them, but I know these handful of people will know what to do. They will know what to say and how to get me help. They will contact who needs to be contacted and they will follow up.
I know this because this has happened many times. I have been to that point where the quick sand is swallowing me and I reach out one last time, and these people have pulled me from the abyss by finding me help, contacting my family, keeping in contact with me and asking me the hard questions. You have to know what it feels like to be suicidal in order to know what to say.
Being suicidal appears to be threats and only that. A person is suicidal because they are saying they want to kill themselves and sometimes, they actually do. People on the outside view it as an external behavior. What people don't understand is the significance and impact of the internal thoughts, what you can't see.
When I'm suicidal, my mind is racing with reasons why it would be a good idea. My mind twists things around and makes excuses. It convinces me that I should kill myself. A slideshow of my dead body plays in my mind and I can't stop it or ignore it. Over and over I see myself hanging from a tree or in a bath tub with blood. The images loop around and if I close my eyes it's all that I see. At this point I'm decided on killing myself. My mind has already been made up. On the outside, I say nothing. No one knows what is going on in my head. No one knows the images that I'm seeing. On the outside, I seem content.
After this, at some point, I realize that I need help. So once, for just a second, just one attempt, I will reach out and see if anyone grabs me. If no one reaches back it feeds into my self-fulfilling prophecy that no one cares. But every time, someone has reached back.
I confide in them where I'm at. I'm at the decided stage. I've made up my mind that I have to die and I'm beginning to mentally plan a good date and time, a clean mess free method and something that will get the job done. If I don't contact anyone, if I'm alone and I could do it, I start to rapidly think of ways that I could do it now. Anything. A train, a gun, rope hanging somewhere, a plastic bag.
One time I reached that point quickly due to trauma and I began to frantically run through the house attempting to grab any knives or pills I could get my hands on. I just couldn't live for another second. I couldn't take the pain anymore. My family would be better off without me. I'm a burden. They deserve better. I'm a failure. I don't deserve to be alive. I just take up space. I'm pathetic. The world is better off without me. I'm a parasite. I am doing everyone a favor.
My mind races while images of my dead body fly through my head as well as ideas on what I could do to accomplish to the task. I appear silent. Preoccupied. Quiet. But my head is nothing but quiet. It is deafening and screaming at me. It is so loud that I can barely carry on a conversation. I wish I could turn down the volume but I can't.
I'm slowly slipping towards the white light and no one around me is even aware of what's going on. If you asked how I was doing I would say "ok", but I was not "ok". I was anything but. Having never had a successful suicide attempt (obviously) I don't know what it's like to be in the final moments before your own death. But I do know what it's like to be sucked in to the obsession of your own death, and to have your mind convince you it's a good idea.
When a person reaches out, TAKE THEM SERIOUSLY. I cannot stress that enough. People (typically) do not threaten suicide for attention. Wanting to live is a basic human instinct. Having the obsession to die is seriously dangerous. Try to convince them to go to the ER or a Crisis Center. Try to convince them to contact a suicide hotline. Contact their family if possible. Them reaching out to you could be the only thing keeping them from attempting suicide. This can be their one chance and you can save them.



National Suicide Prevention Lifeline
1-800-273-8255
Online Chat:
http://chat.suicidepreventionlifeline.org/GetHelp/LifelineChat.aspx

Social anxiety and the holidays


There is a time of year that I look forward to all year long. These three months are my element. October, November, and December. Sweatshirts, cocoa, pumpkins, Christmas lights, Christmas music, Christmas anything. These three months are what I look forward to when it's 110 degrees outside for the fifth day in a row. My heart twinges with excitement as the weather begins to cool down because I know what's next; October, November and December. My months. Gift giving and pumpkin pies and rainy days and the smell of the heater kicking on. I love it all. All except one thing.
This tiny little thing is a big thing to me, and as usual, my reaction to it is way above and beyond what is normal. This tiny thing is social events. As the weather cools and the wreaths get hung on doors, in pour the invitations for social events. Office parties, family potlucks, friendsgiving and heaven forbid I host ANYTHING. The mere mention of these events and my fight or flight kicks in. My immediate thought is "no no no, I'd rather curl up into a ball under a mound of blankets". We can't possibly go to these events, I want nothing to do with them. My social anxiety's nemesis is a potluck at Grandma's house.
See, when I go to these events, I kind of freak out. It's not the delicious food that intimidates me, or the holly above the door, but it's the people. The interactions that come along with being at a group gathering as well as paranoid thoughts that everyone is judging me for everything I do. "What have you been up to?" is a question I'm dreading this season because "nothing" isn't really an appropriate response, or should I tell them I've made a breakthrough in therapy? I do well at events in which I'm expected to have little to no social interactions such as a very big office party. I can sit at a table and munch on chips all day. But when people start talking to me and asking me questions, my panic button goes off.
Going to Grandma's potluck is a doozy as well. My family all gathers for a holiday and I immediately want to find an excuse to not go. The questions and feeling like everyone is judging me. Not to mention the teeter tottering into a panic attack feeling that goes along with it all. My family is nice and cordial, always sweet and kind. But inside I'm screaming and I feel like running away.
Getting together with a large group of people is difficult for many people that have a mental illness. And sometimes we tell you that we can't go because we just can't go. We just can't. I try to force myself to go to what I can. But sometimes I back out at the last minute or decline invitations because I just can't. I don't have the strength.

Wednesday, November 9, 2016

In rolls the tide, out rolls the tide.



Two days ago I had a wonderful day. I was motivated, I was ecstatic, I was energetic, I was talkative. I enjoyed the day and forgot what it felt like to not be so happy. It was a weird medicated version of hypomania. It lasted for the day. It was a good day.
But the aftermath isn't pretty. Slowly I can feel myself falling into a depression. My lack of motivation, happiness, contentment and pleasure in general tells me it's going to be a deep one. The world is grey. There is no end to this bad day because I wake up and feel the same, day after day. Thanks to medication it's not as bad as it should be. I should be suicidal. I should be laying in bed with the covers pulled up. I should be crying myself into oblivion.
But I'm not. The medication has taken the edge off but the pain is still there. So I grin and bear it. I push myself to be productive and complete tasks. I force myself to be social and smile even though it feels like I'm dying inside.
Two days ago I forgot what it was like to not be happy and today I can't remember what pleasure feels like. I can't remember what it's like to feel emotion. I hope it ends soon because I have shit to do.

Monday, November 7, 2016

The Med Controversy




Every day there is a controversy in medicine. Not the ones in hospitals or big pharma, but the one in my pill box. The one in my head. Every day the question comes up and it is avoided. It is put off and ignored until I have to sit myself down and say "Sarah, take your meds." This is usually about noon, when morning has literally passed and I still had not taken my morning meds.
The controversy in my head wages a war between the two sides, and it is a tough fight. Logic says "yes", take your medicine. It makes you better. It's only a pill. Just swallow and move on.
But my head says no. My head says to stop taking them all together. Flush the remaining pills down the toilet and move on with my life. Why? Because they are changing my life.
What if these pills are changing who I am as a person? What if they are changing what identifies me, as me. In some ways my symptoms are part of my character, and suddenly to blunt them is blunting me. My identity is changed.
Or what if this is all made up. Everything is just a sham. I've lied to everyone and there is nothing wrong with me.
Or what if I am just immature and everyone feels the way I feel but I'm less than. I'm weaker. I'm a failure.
The med controversy begins as soon as I wake up when I ignore them. It ends when I give in and take them. A fresh memory of not taking them is still in my mind and it was not pretty. So I take them.
And then at night I take them without a problem. Unless I'm on a med strike in which I lay in bed and glare at the box on my dresser.
The next day, the controversy begins again. What if this is changing who I am? What if it's all a lie? What if I'm being dramatic?
Every day, the med controversy occurs and usually every day, the meds win. But sometimes it builds up in my mind and I begin to cling to an idea and then I stop taking my meds. At which point I end up curled into a crying sobbing suicidal mess and I can feel nothing but darkness. I'm not sure if that's withdrawal or my reaction to not being medicated, but either way it is what happens when I stop taking my meds.
So I take them. Sometimes I don't.

Tuesday, November 1, 2016

No Motivation

As humans, we are wired to be productive. We may take breaks here and there, or even full days to relax. But for the most part, we are a productive species. We build buildings, we write papers, we mow the lawn, we go for a promotion and go to the gym. We do stuff. Something inside of us drives us to do stuff. The alarm goes off, we jump in the shower, we get dressed and we do stuff.

But what happens when that part of your brain doesn't work properly? What happens when the drive to do stuff isn't there? This happens to me. This is happening to me right now. Writing this and doing 1 load of laundry is all of my productivity today. I have opportunities to be very productive. Every day I have 2.5 hours when all of my children are in school. During that time I could do something productive. Every day, I try. I make tea. I do laundry. I research. I try. But it's a struggle to do anything. Without my children, there is zero motivation because no one is pushing me.

The part of my brain that is supposed to motivate me to get things done is broken. I get all set up, get all my ducks in a row, and when it comes time to execute the task, I just can't. I just can't. All of the motivation that I'm supposed to have isn't there. Instead of taking out the trash I have to drag myself to take out the trash. I ruminate over the laundry pile for hours before I finally start a load. I dread getting out of bed because that's all I want to do today.

But every day I drag myself out of bed and I force myself to complete daily chores. I help the kids get ready for school, I run errands, I take my son to preschool and I try to be productive in the afternoon. Usually I'm not. But that is an improvement from the time when I used to sleep the afternoon away every day. Now I don't sleep but I find things to do, and I force myself to do them.

Having no motivation makes life difficult. Everything is a chore. Every task, no matter how small, is a chore. It's an uphill battle with no end with each step being exhausting.

Tomorrow I will drag myself out of bed. I will make coffee. I will smoke a cigarette and I will prepare for the day mentally. Tomorrow I will force myself just like I did today, and yesterday.

My Children Save Me

My children love me unconditionally. My children are saving me. It is because of them that I am still alive. Imagining their reaction to losing their mother is more than my heart could bear. But they also help me in other ways. They save me from myself.
Not getting out of bed, not showering, not eating, no motivation to do anything, feeling physically sick and on the verge of tears are some of the things I deal with sometimes. But my kids make me. I have to get out of bed, I need to help them get ready for school. I have to shower, my young son asks me to shower with him. I eat because they eat and I don't like to waste food. They pull me from the couch for parent teacher conferences and birthday parties as well as the whole pick up/drop off routine. I don't want to participate but I have to. I have to attend those things because what kind of parent would I be if I did not? Those are important things. I want to be there for the important things.
The day that I desperately searched our house for ways to kill myself and my husband held me down on the bed, he told me about our kids. Our daughter's wedding, our son's graduation, grandchildren. Those are all important things too. I have to be there for them. I sobbed as he named off what I would miss out on and how my children would feel as they had a milestone without their mother.
It is because of my children that I sought help. It is because of them that I fought when I have had to fight. It is because of them that I try to do better. Be better. It is because of them that I try my best. Of course some days are better than others but I try. It is because of them that I try.
Sometimes all I want is a studio apartment to myself. That way I have no one to disappoint, no one to drag down my path. But I know if I was alone, I would have offed myself already. I know their childhood is going to be different because they are growing up with me as a mom, but they are saving me everyday.

A secret

I have been seeing my therapist for over a year. She knows me better than most people. Actually, considering I share with her my deepest secrets and darkest fears, she probably knows me better than anyone. It is nice to have someone to share those secrets with.
It was at our last appointment that we approached the subject of a new diagnosis. I obviously have bipolar II (even though I doubt my diagnosis all the time). My chronic wave of moods has been blunted with medication but I still deal with them. As we talked about my symptoms the topic of my hallucinations and delusions came up. I again described what I was experiencing. Again, these have been blunted with medication but they were still present, and it didn't matter what mood I was in, I still saw little brown animals scurry across the floor and I still became paranoid that government officials were watching me when I came across a person with a walkie talkie or holding a notebook. I no longer believe my neighbors are peeking through my windows and I don't hang blankets over the windows anymore, but nevertheless, they were still present.
As I explained the small (to me, they are small) hallucinations and delusions I was experiencing, she folded her arms and observed quietly. She knew something I didn't know. She has seen me in every mood and she knows all of my symptoms.
Schizoaffective is what she suggested. I've heard that word before. My doctor had also suspected schizoaffective when I explained my symptoms. But he proclaimed it was "just a label", and prescribed me medication for schizoaffective but did not change my diagnosis. He mentioned it again at another appointment and he always asked about my hallucinations and delusions at each appointment. It was an ongoing discussion.
At my last appointment with my therapist we read books together that described schizoaffective and the criteria one needs to meet in order to be diagnosed.
I met the criteria.
There is one thing that I don't meet and that is the fact that I have Bipolar II, and schizoaffective only talks about Bipolar I. But surely there is a spectrum. And surely because I have Bipolar II doesn't mean that I can't have schizoaffective just because the book fails to mention Bipolar II when describing schizoaffective because I meet all the criteria.
Before my diagnosis did not include my hallucinations and delusions. Bipolar II specifically states that it does not have these symptoms, only in Bipolar I are they present. But I do not have Bipolar I. So my "extra" symptoms were being treated but were not acknowledged in my diagnosis.
It is now acknowledged. I have Schizoaffective-Bipolar Type. And all of my symptoms fit neatly in that box.
Schizoaffective is a progressive disorder, meaning it gradually gets worse over time. But treatment can slow or even stop that progression. The worse prognosis is going mute, not getting out of bed for weeks or months on end and the inability to care for yourself. Group homes is where patients sometimes end up. Inability to hold a job and homelessness are possible factors.
At this point I am able to function on a day to day basis. I bathe regularly. I cook and clean and care for my children. There are times when I just simply can't, and on those days I just simply don't. I do the bare minimum and nothing more. One of the symptoms of Schizoaffective is lack of motivation or drive to do anything and that is something I struggle with. Whether depression is present or not, I lack the motivation to live a life but my children force me to because I want to be a good mother for them. I want them to have good memories. I want to be supportive and loving. So most of the time, even when I don't feel like it, I still participate in this thing called life. And I do it for them. If it wasn't for them, I would have committed suicide by now.
Having this new diagnosis explains my extra symptoms and sheds light on some things, like my lack of motivation (even though I still push myself to live, for my children).
But having this new diagnosis carries a lot of weight. It is Bipolar and Schizophrenia mixed together. I am REALLY crazy now. But I have a name to put with it all and that is refreshing. Nothing has changed really. My medication will stay the same. My symptoms have not changed. But the name of my disorder has changed. And I am still coming to terms with that.

Monday, March 28, 2016

I Love-Hate Shared Custody


Featured on Scary Mommy


Someone once told me that life can be beautifully tragic, which is a pretty accurate description of the pain and joy we all experience in our lifetimes. Life is truly incredible, but absolutely gut-wrenching at the same time, sometimes in the same moment. This description of life very accurately describes the life of dealing with shared custody. It is quite awful, but there are these awesome perks that help alleviate the pain that goes with the fact that my daughters will spend a percentage of their childhood away from me.
I remember when the four of us parents sat down and discussed the custody schedule once the girls would be attending school. It was decided that they would spend their weekdays with me and my husband, and they would spend the weekends with their dad and step-mom. I was defensive at first, and then eventually broke down. The realization that they would never jump on our bed on Saturday morning or read the Sunday morning comics or go to the farmer’s market broke my heart. I knew I wanted to be present for them on school nights to help with homework, but I also wanted the weekend. Apparently, this approach is not shared custody. Dammit!
It has been a few years now, and I have adjusted much better than I had anticipated. I have a love-hate relationship with shared custody. I will always hate it, but I have learned to love it too. Here is why:
I hate not knowing what they did over the weekend. When I ask them, they will say, “I dunno. Stuff. I ate corn,” and that’s about it. I have no idea what their routine is. I have no idea what they did once we get them back. Once we bought a new movie and surprised them one evening. They groaned and said they had already watched it at their dad’s house a few weeks ago. Their first Disneyland trip? With their dad. I cried for a while because of that. There are many special treasured moments of childhood, and I am, and will continue to miss out on many of them.
I love my weekends off. On Friday morning I brew coffee, turn on the radio and help the girls get ready for school. We walk to school, and I make sure I tell them I love them at least five times. I tell them I will miss them. My 5-year-old lingers in a hug because she knows. It’s routine. Every Friday, they go to school from my house, but go home to their dad’s house. This means that every weekend, like clockwork, we are girls-free. We still have our 3-year-old to jump on our bed on Saturday morning, but there is a blanket of serenity that lays on our house when we go from three children to only one.
We go from a family of five to a couple with one child. Going to breakfast on Sunday morning involves getting one extra plate to share, instead of ordering three separate kids’ meals. Going to the mountains means loading up only one child instead of three. When we desire an adult weekend, we only have to find childcare for one child, not three. When we attend weddings or other stress-inducing events, we attend as a family of three instead of a family of five. The weekends give me much needed time to rest and relax from the busy week before as well as prepare for the week coming up.
When we head down the highway at 4:40 p.m. every Sunday, I know our week has begun. Our semi-quiet ride will be replaced with a noisy ride back. Their empty car seats will be filled, and our family will be whole again. When they ask what we did, I will say, “I dunno. Stuff. We ate corn,” because I know telling them of our couple-plus-one adventures will make them feel left out and unloved, so we keep it under wraps. Our week begins, the chaos ensues, and I am happy because the girls are home.
I hate that I share the “mom” title. I’ll never forget when I first met my girls’ step-mom. I was alone, shopping for clothes at the mall, and I saw my two daughters in a store. They ran out to give me a hug, and from the clothing racks emerged my ex-husband and his then girlfriend. I made our greeting short and sweet and went about my day.
But knowing that this woman would be a part of their lives really bothered me. I never intended to share the role of mommy with some woman whom I had never met. A couple years passed, they were married, and my older daughter referred to her as “Mama” once in conversation. The fires of anger were lit and I was furious. Once, the girls’ handmade school Mother’s Day crafts were sent home to the other house. In a terrible moment of anger, I lashed out at my ex-husband: “How dare that woman take my macaroni necklaces and handprinted cards! There were mine!”
I love that they have another mom. I excel in certain aspects of motherhood, while other areas are left completely untouched. Their hair, for example, is not my forte. I have always worn my hair down in its most natural state, and hair dryers and straighteners are completely foreign to me. Luckily, the girls have this wonderful woman in their life who has a talent with hair. She braids, curls, sprays and decorates their hair with fancy clips.
She was there to comfort my daughter when she face-planted off a quad. She was there to hold my daughter’s hand when she was scared at the doctor’s office. She is there when I am not. She offers them comfort, care, love, respect and guidance. She has taken on the role of being their “other mother” very well, and the girls are very lucky to have such a wonderful step-mother.
I have since let go of the Mother’s Day crafts and the title of “mom,” because I do not own this role. I share the role of mommy with another woman who also deserves the title of “mommy” and the macaroni picture frames, because after all, she is mothering them too. Hopefully, together, we can mother these girls, each of us filling in the empty spaces the other leaves—whether that is hair art or loving comfort in moments of pain.
I hate that we have to navigate the waters of morals with another family. After our divorce, my ex-husband began to explore religion and became Christian. This was a big difference between his agnostic stance that he had in our marriage, one which went well with my atheist beliefs. Religion was a non-issue, and now suddenly, it was a big issue. My older daughter once told me I was “going to hell,” which are big words to come from a 3-year-old in a pink floral car seat. As she got older, she began to pray each night before dinner, and then insisted that we all join her. I was, and still am, accepting of their beliefs as well as their routine Sunday School attendance, but I became very bothered when those beliefs began to flow into my home by way of prayer and hymn singing.
I love that the girls will be raised to accept and appreciate differences. While each home is similar in many ways, our homes are still very much different. At our house, the rules are lax, and we are pretty laid-back. I know this is different from the environment at their other house, which is something I have grown to appreciate. My daughters will be raised in two separate environments with different rules, different approaches and different beliefs. They have already learned that prayer is an individual choice, not a requirement. They have learned how vastly different city life is compared to country life, because they go back and forth between them each week. I appreciate the dynamic life they live as it will make them more accepting, appreciative and loving well-rounded adults.
Our family is unique, and the girls seem to be happy about. They have asked why we all can’t live next door, but have never asked why our combined family of nine can’t be a family of 4 again. They love (and sometimes brag) that they have two dads, two moms, two brothers and two sisters. When they draw a family picture in school, they draw nine stick figures, not six or five.
The adjustment of not being Queen Mom was difficult for me. I still sometimes cry when they leave, and I shove in as many “I love you”s as I can on Fridays so it will be enough to hold them over until Sunday, but our shared custody situation absolutely has its perks. I will always hate that I miss out on so much of their childhood, but I have decided to make the best of the situation and love the perks that come with it. Shared custody is awful, but also awesome too.



What I hear






What I heard when I was growing up:
You are such a worry-wart.
Stop crying, you're going to make yourself sick.
Enough with the pity party.
Just stop.
If you would just get out there, you would feel better.
It's hormones.
Stop making a mountain out of a mole-hill.
Suck it up.
Stop being dramatic.
You're being a damn baby.
You're just lazy.
It's all in your head.
You do this to yourself, you know.
You're fine, quit it.
Get over it.
Enough already!
You're doing this for attention.
Are you doing this to fit in?
You're wasting your life.



What I hear from my 30-year-old brain every.single.day:
Stop being so dramatic.
Just stop.
You're making this all up for attention.
Get over it.
Stop acting like this.
What a waste of a life.
What a baby you are.
You're immature.
This is all for attention.
You're making this all up.
What a fucking baby.


Growing up, my actions and feelings were not validated. I was told over and over and over again that I was just being dramatic. Just knock it off. Get over it. My symptoms of anxiety were shamed. My symptoms of depression were belittled. I was shamed. I was belittled.

And now I do this to myself.

Anxiety.
Depression.
Bipolar.

Half of my therapy so far as been focused on accepting the fact that I DO in fact have a mental illness. I do, in fact, have valid feelings and emotions that are abnormal and it is not because I am being dramatic or being a baby. Half of my therapy is repeating that I need to continue to take my medication, that I need to continue to seek help, that I need to continue to accept that I have a mental illness.

I am not a baby. I am not being dramatic. I am not doing this for attention. This is not all in my head. I am not creating this mess for fun. I am not making this up. I have a mental illness. I am not a bad person. I am not immature. --This statement is hard to type, and impossible for me to say out loud. I hope one day, I can accept my diagnosis and stop blaming myself because for so long, I have been blamed for my behaviors and emotions.

I have a mental illness.

Monday, March 21, 2016

My "thing"

For a while now I have been encouraged to find a thing. A "thing" that gives me an outlet, allows me to be calm, is therapeutic and productive. I have always assumed it was my writing, which is why I started this blog. I always thought my writing was what set me free. Now, of course, it does set me free in its own special way. I am able to express my thoughts and fully capture my journey with words. Writing is easy for me. It is something that does not challenge me, and while I have tried to pursue it professionally, I found that it sucked the life out of it. I get tickled pink when I see a blog post has a lot of views. But that's about it. That is about as far as I want my writing to take me. Maybe someday in the future I will want to write a novel or a play, but for now I am sticking to my little blog and the giddiness I get from the page views. And the love I get from the comments. Those are my favorite. Some have brought me to tears.

But writing is not my "thing". The thing my therapist has encouraged me to find. The thing my family has asked me to seek out. The passion filled thing that gives me a reason to wake up. A thing that I love so much and that brings me so much joy that hopefully, I can turn to it when I feel suicidial. I have read and heard that people with bipolar have a pie of wellness. 1/3 is medication. 1/3 is psychotherapy. 1/3 is self care. In that 1/3 of the pie is that "thing". Of course in self care is adequate sleep and food, and other self care items but also a "thing".

I am happy to announce that I have found my "thing". I used to swim in high school. I loved it. I wasn't a superstar but nothing compared to it. I loved the way the bubbles formed around my fingertips. I loved the way my lungs would expand and deflate. I loved the warmth my leg muscles felt. I loved the way my skin smelled. I loved the way I felt after I swam. My body felt strong and powerful. I loved it.

I am 30 years old now. I haven't swam for well over 10 years. I was inspired by a friend to seek out a way to get back in the pool. I found a program that offers 9 1-hour swim sessions a week. My schedule allows for only 6, sometimes 7. I have been doing it for a week now and I love it.

It is every other day but it has become as important to me as therapy and my medication. My "thing" is swimming. Two times a day, three times a week, I am in the pool. I absolutely love it. I feel free. I wish I could swim more.

I have found my "thing". :-)

Friday, March 18, 2016

An open letter to my loved ones

Hello. First of all, I would like to say that I love you. I love you so much that it hurts. I know you want to be supportive of me, but you aren't quite sure how to do that exactly. Honestly, I don't know exactly what you should do either. This is all foreign to me as well. If I knew what you should do, I would make a list and pin it to the fridge. But I have no idea. What I do know, however, is what does NOT help. I know what hurts. I know what makes me feel alone. I know what makes me want to crawl inside myself. So here are a few things that you can avoid doing in an effort of being more supportive:

1. "Don't let it/allow it/make it worse."
I don't allow anything. If I allowed it, I would allow it to go away. Forever and ever, amen. I have a brain disorder, or a chemical imbalance, whichever makes you feel like it's a legitimate illness, because it is that exactly.. a legitimate illness. An Illness I cannot control. An illness that I suffer from. I have no control over the switch that reads "high/low", and I also have no regulation of how high or how low I go. What I do have is coping skills. I cope by coloring, swimming, cleaning and walking. The depression is still there, it is still just as severe as it was when I was lying in bed wrapped in blankets, but when I am using a coping skill, I am doing something to take my mind off of it. But I could color a thousand pages or swim a million laps and the depression would still be there, just as severe as it was before I put my bathing suit on. I have no control (I HAVE NO CONTROL) over how often, how severe, how long or how depressed I get. What I do have control over is my coping skills.

2. "You should get up and do something"
(Insert first paragraph here)
But also, sometimes the depression is so severe that I simply and physically CAN'T do anything but lay in bed. Sometimes I am so depressed that my mind takes over and I can't even formulate coherent sentences. At this point, I am PHYSICALLY INCAPABLE of watching TV, walking, writing, talking. Sometimes, I won't even try, or attempt to try. I won't even pretend to try because I just simply can't. And laying wrapped in blankets on the bed is my coping skill because in that moment, at that time, the only thing I want to do is find a strong tree and hang myself. But instead I have decided to wrap myself tightly in a blanket and stare off into oblivion until the urge to kill myself has passed. So please, don't ask me to go for a walk or guilt me into watching tv. Hug me. Love me. I am struggling tremendously. And bring me a water bottle because I am probably thirsty.

3. Avoid me/don't talk to me/ignore me
In addition to being depressed, I also get delusions which can be quite major but also quite small. Sometimes I am convinced that a friend is mad at me, or that YOU are mad at me. So walk down the hall without even saying hello. Then you leave for the store without letting me know. You don't call for weeks on end. I need you to say hello. I need you to ask how I am doing. I need you to smile at me. My depression lies to me, and I become convinced that I am the target of everyone's anger. So your simple smile, or hello, text, call, or head popping in the room with a small conversation means the world to me. When you avoid me, don't talk to me or ignore me, I assume the worst. I assume you hate me, you don't care, you are mad at me, you don't love me. My lies to me so I need you to show me that you do care and you do love me by making small gestures to remind me that I am loved and cared about. A "normal" person wouldn't need so much reassurance, but I do. I need a lot of reassurance all the time. So ask me how my day was.

I don't know what to do about my brain disorder. If I knew how to handle it and deal with it, I would. But I don't. It may take years of therapy and a lifetime of medication to get it under control. I don't know what to tell you to make me feel better because that's a lot to ask. And I have no idea where to begin on how to make me better. But what I do know is that sometimes a small comment burns in my heart. It invalidates my brain disorder and makes me feel like a childish whining loser. My brain tells me all the time that I am a childish whining loser, so I really don't need anyone on the outside to reinforce that idea because I do that enough on my own.

I love you, and thank you for trying. I know it's hard to deal with me. I'm a hot mess. But I appreciate all your effort and love you have shown. It means the world to me.

Sunday, March 13, 2016

It's gone.

And just like that, it's gone.

I felt it disappearing last night. I thought I was going to be hypomanic. My legs wouldn't stop bouncing and I felt wide awake even though it was 9 o'clock at night.

But then I woke up laughing this morning. And I realized the depression was gone. It lasted for three weeks this time. Last time it lasted for 6 weeks. This time it was deeper than ever before, but it was short.

It will be back. Make no mistake. No medication or therapy will prevent it's return. It may make it less intense. It may make it shorter and less frequent. But it will be back, for sure.

But for now, I'm going to laugh and smile. I'm going to enjoy being me without the shame and guilt and suicidal thoughts. I'm going to enjoy my life the way it was meant to be experienced; with happiness, joy and contentment. I am happy today.

I don't know how long it will last. Some day soon it will reappear. But I will focus on today. Because today is beautiful.

Saturday, March 12, 2016

Ruby Red Slippers






I laid on the bed on my stomach, sprawled out across the sheets and blankets. My chin rested on a pillow. I didn’t want to mess up my hair. I watched the bunny in her cage run from the first floor to the second and back again. I wondered if he would remember to change her litter box. I know he would remember to feed her, but I usually change her litter box.


I decided the kids would adjust. Maybe they would have to seek therapy. Maybe they would be young enough that they wouldn’t remember me. I would just be a box of pictures and second-hand memories. That would be better. I didn’t want them to remember me. Especially like this.


I got up from the bed and sat at the foot of the bed. I had 45 minutes until my therapy appointment. I already knew what I was going to say. I knew I was going to tell her that I didn’t care anymore. Before, the thought of my family losing me is what kept me from killing myself. The trauma of finding my body would be too much for them. But I had thought of a few ways that would prevent them from finding me. There were strong trees in the woods. There were a lot of trains in town. I would feel bad for the conductor. I’m sure it would be a bad day for him, but how else would I do it? I know the best way is to swallow a whole bottle of pills. We happened to have hundreds of Vicodin in a pill bottle in my parents bathroom. I could easily swallow them all and chase it with a few glasses of wine. But then I would leave a mess. I would vomit. And my body would be lying somewhere. There would be a mess. I didn’t want a mess. I wanted to just disappear. I wanted to not exist anymore. Ideally, a guardian angel in search of it’s wings would float down and show me my life if I had not existed at all, like It’s A Wonderful Life. That would be perfect.


I haven’t found an angel yet, and I haven’t come up with a way to completely disappear. I have thought about driving away and never coming back but where would I go? All I knew is that my family deserved better. My husband deserved a better wife. He got a lemon. My kids deserved a better mom. I was broken and they deserved better. By going away, I would cut the chain that was connecting them to the burden of me.


I know my death would be painful for them. But they would adjust. They would be okay. I just couldn’t do it anymore. I couldn’t live this life anymore. I felt like I was dying from the inside out, the way a sausage in the microwave cooks too much on the inside and becomes dry and tough. I had become a shell of emptiness. My family deserved better. And I was going to give them the opportunity to have better. I would be replaced by someone unbroken. Not a lemon. Someone that could fully be there for them in the ways that I couldn’t.


It was time to leave for my appointment. I whispered to my husband “I’m having a very bad day”.
“I know”, he said. He hugged me.
“They’re going to send me away”, I said. My voice was shaking.
“If they do, that’s ok. I love you.”
I didn’t say it back. I always say it back, but I couldn’t.


I climbed into the truck. My watch beeped for 3:00. I remembered to bring it this time. The last time I went to the crisis center, there were no clocks and it drove me crazy. I remembered to grab it this time. I just had to know the time. I had to know how much time had passed.


The wait was fast, and my therapist was chatty at first. She asked me about a recent support group I attended. I brushed over the subject and she instantly knew something was wrong.


“I can’t do this”, I said as I began to cry.
“Do what?”, she asked.
“I can’t do this anymore. I feel like I’m dying. I can’t bear to look at my children. I can’t keep living anymore. It hurts too much.”
“Are you feeling suicidal right now?”
I sobbed. “Yes”
“Do you have a plan?” She asked. They always ask that question.
“Which plan? I have ten.”
She sat silently for a few moments. “I’m going to call in a crisis counselor, is that ok?”
I nodded.
A few minutes later, a man arrived. He introduced himself and then kneeled down to try to make eye contact with me. The tunnel vision had taken hold and my glossed over gaze was fixated on the book shelf. I couldn’t move anymore. I was frozen.
“Sarah, I am here to help you. I want to first of all say thank you, and great job for coming to us. That is absolutely fantastic. You should be proud of yourself.”
I didn’t feel proud at all. I didn’t feel anything.
“Now, tell me, do you have family?”
“Yes, 3 kids”, I whispered.
“Your children need you. I know you don’t feel that way right now, but they need you. Sarah, tell me your plans.”
I whispered. “A train. A rope on a tree. The pills. A knife. Anything.”
The man sighed and dropped his head.
“Sarah, I believe you are in a crisis right now and I would like to escort you to the crisis center to get help. Is that ok?”
I whispered again, still fixated on the book shelf. “Yes. But can I smoke first?”
“Absolutely”, he said. “I’m going to go pull the car around because it’s raining pretty good.
My therapist walked with me down the sidewalk and to the ashtray near the parking lot. I smoked. I knew it would be the last. The last time I was at the crisis center, they said there was no smoking in the facility and it was too late for a nicotine patch. I took long drags, and then apologized as I put it out in the ashtray.
The three of us climbed into the car. The rain drenched my hair. It rained the way I felt.


We arrived at the crisis center. The door was unlocked, and then relocked once we were inside. Hearing the lock on the door click over hurt my ears. I was locked in. The receptionist asked if I wanted to talk. I was done talking about it. I didn’t want to talk about it anymore. The therapists relayed the information to the receptionist. They told her about my numerous plans. They told her I was in a serious crisis and would need to be admitted. I stared at the floor as the talked. The last time I was here, I counted the tiles. I didn’t feel like counting this time. I just stared.


After a while, the therapists left. I was locked in. They showed me to a crisis room. The same cot I remembered from the last time. Within minutes, a sweet nurse came in with a cup. A pill to help me calm down, and a nicotine patch. “Thank god”, I thought. Nothing is worse than being in crisis while simultaneously being forced to quit smoking. I wanted to chain smoke at this point.


The last time I was here, nothing happened. No one came to check on me. No meds were administered. No nicotine patch was given. I sat in the room, alone, weeping, for hours. After 8 hours, I begged to go home. I pleaded. I told them I felt better (I lied) but I knew that going home to my loving husband would make me feel better than sobbing on a cot for hours on end.


This time was different. I could tell by the immense amount of paperwork at the desk. I could tell by the phone calls. I took off my shoes, curled up in fetal position on the bed and just stared.


“Would you like a blanket sweetie?” The nurse asked when she came in to check on me.


“Yes please.”I said, still staring into oblivion.


She covered me with a warm blanket and I drifted to sleep.


“Sarah?” My name being called startled me. I had no idea where I was or what time it was. “You’re being transferred to a Psychiatric hospital in Sacramento. An ambulance will be transporting you.”


“Ok”, I mumbled in my half-awake state. I drifted back asleep.


“Sarah?” I again woke up startled and disoriented. “The ambulance is here to transport you.”


I sat up in the bed. Whatever med they had given me had made the room spin in one direction and my head spin in the other direction. I stumbled putting my shoes on, gathered my jacket and walked towards the door.


The rain continued to pour down in sheets. It matched my mood.


“Watch your head”, the ambulance driver warned me as I stepped into the ambulance. To the left was a bed. To the right was a bench. I didn’t know where to go, so I just stood there in a daze.


“Have a seat”, the female ambulance attendant said as she pointed to the bed. I sat down. And then laid down. I was so tired. She buckled three seat belts across me. “Let me get you a blanket.” She said, and she wrapped me in the warmest blanket I’ve ever felt. It felt wonderful.


“I love your shoes.” She said, pointing to my sparkly red slippers I was wearing. “They’re just like dorothy’s shoes from the wizard of oz,” she said and smiled. “Ruby red slippers.”


“Thank you,” I said as I closed my eyes.


“It’s a two hour drive so feel free to get some rest. It’s going to be a long drive.” I had already started to drift to sleep.


Every now and then a bump or jolt would startle me awake and I would watch the street lights passing backwards through the window. I looked around the ambulance a few times. The shelves that contained the medical supplies were zip tied closed. I couldn’t move because of the seat belts and I wasn’t sure if they were for safety or to restrain me. Probably both.


After two hours, the ambulance came to a stop and the back doors opened. We had arrived. I wasn’t sure if I was to walk or stay on the gurney but before I could ask they pulled the gurney out of the ambulance, the wheels came down and they began to wheel me to the front door.


The front doors were locked. It was 4 o’clock in the morning. The ambulance driver buzzed the doorbell and after a few minutes someone came down to open the door. We were directed to the elevators which had to be unlocked. The nurse pressed “3” on the elevator panel and up we went.


Once we arrived in the lobby of floor 3, a nurse was seated on a leather couch opposite of another leather couch. “Have a seat”, he said. I was removed from the gurney and I sat on the couch. Then, the questions started.


How are you feeling?
Do you feel suicidal?
Sign here.
Initial here.
Have you attempted suicide in the past?
What is your diagnosis?
What medications are you taking?


“You are lucky”, the nurse said at the end of the interview. “This wing is strictly for mood disorders. Bipolar. It was created two years ago. You’re lucky.”


He lead me to a room where a single cot lay in the middle of the empty room and a hospital gown laid on the bed. “Undress and I will get a female nurse to do a skin check” he said as he left the room. I removed my clothes and put the gown on. I was unsure if I was supposed to leave my underwear on, so I did anyways.


The female nurse arrived and she examined my body. She checked the crevices for hidden weapons, my wrists and legs to see if I had harmed myself. She opened my buttocks to see if I had hidden something there.


After the examination, she gave me another hospital gown to drape over the back like a robe. She walked me to the entrance of the third floor where she scanned her ID badge and the door clicked open. We walked down the hall a ways and she pointed to a room. “This is your room.”


My name was written on the door along with another name; Molly. “Freaking great”, I thought. A roommate. All I wanted was to be left alone. As I walked into the room I saw the simplicity of it. Two beds, two book shelves. All the corners were rounded. The windows were sealed off and covered in hard plastic. A bathroom was also present however the “door” was a simple curtain.


I noticed Molly’s hair was purple, just like mine. I didn’t care though. I didn’t care about anything. All I cared about was sleeping. I pulled the blankets back and crawled into the empty bed. I curled up into fetal position and cried. And cried. And cried. And cried. And cried.


For 26 hours, I cried. I didn’t move. I didn’t pee. I didn’t eat. I refused interactions. I refused everything. I cried. And I cried. And I cried. I considered bashing my head against the footboard of the bed. I considered chewing off the strings on the hospital gown and tying them around my neck. I considered putting my head in the toilet and drowning myself. Instead, I cried for 26 hours, and a nurse checked on me every 15 minutes.


At one point, a nurse arrived in my room and asked if I wanted my clothes washed. Clean clothes and a shower sounded nice so I said yes. She took them and put them in a bag outside the door. I went back to sleep.


I woke up starving. I didn’t know what day it was but thanks to good planning on my part, I was wearing a wrist watch. It had been two days. A nurse walked into the room and said, “Sarah, your dinner is in the day room,” and he left just as quickly as he came in. “Great,” I thought. “They are manipulating me out of the bed with food.” I sighed and complied, slipping my ruby red slippers on, wrapping the outer gown tightly around myself and I shuffled to the “day room”.


Inside I found people. Patients like me. A table with puzzles, a tv. Books. Coloring books. A table with pitchers of juice and coffee, and my to-go box of food with my name written on it. I grabbed the box and headed towards my room but a sign above the door read “No food or drinks in the bedrooms” stopped me. So I found an empty chair, opened the container, and ate whatever it was that was there. I didn’t care.


The other patients talked. They laughed. They made jokes, played cards, read books. I hated them. I loathed them. How could they laugh at a time like this? How could they casually be reading a book as if nothing catastrophic had happened.


A girl seated at the table reading a book talked to my roommate. Their conversation had been going on for a while because both had set the books down, but I overheard “Yeah, I waited until everyone was gone. My sister came home early from school so I had to wait. But once everyone was gone, it was bottoms up.” She said and chuckled. “That’s why I’m here.” Her arms and hands were covered in dozens and dozens of self-inflicted scars. There were burn marks too. I flinched.


I ate the dinner and while I was finishing up, a nurse yelled “Group time!” Down the hall. The remaining patients filled in and sat down in the empty chairs. “Welp”, I thought, “I guess I’ll be attending my first group.”


The nurse heading the group asked everyone to go around the room and state their name, their “mood number on a scale of 0 to 10” and what their goal was for the day as well as what they would wish for if they had a magic lamp. I didn’t volunteer to talk, I hoped they would forget about me. But they didn’t. “Sarah? How about you?” She asked.


“Hi, I’m Sarah. My mood is at a….. 1. I would wish that my ruby red slippers actually worked. And my goal today was to shower.” The nurse thanked me for sharing and the group moved on to the topic. It was dealing with anxiety. A worksheet was passed out and it listed the symptoms of anxiety. We took turns reading the paragraphs on the handout. Then the group was over. I sat in the hospital gown in the chair where I had ate my dinner and I didn’t know what to do.


I decided to hunt my clothes down. The nurse had put them out for laundry at 11:30. It was now 6:30. Surely they should be done by now. I stood up and headed towards the hall. I found a nurse sitting in a chair filling out paperwork. “Excuse me”, I said. “A nurse took my clothes this morning to be washed and I was wondering if they have been cleaned.” She asked me for a description of the clothes and then headed towards the laundry room in the other wing.


I went back and laid on the bed.
I clicked my heels together three times. "There's no place like home. There's no place like home. There's no place like home." It didn't work. I was still laying on the bed in a hospital gown wearing my ruby red slippers that were broken. I was broken.

A few hours passed and the evening meds were passed out. The little cups they used to hand out meds reminded me of the little cups they had at fast food restaurants for ketchup. I swallowed my meds and then asked about my clothes again. The nurse responded that they were in the dryer and were not dry yet so I would probably get them back in the morning.


“Sarah?” I rolled over and saw a nurse. “Good morning. The doctor would like to see you now.” I jumped up from the bed and headed towards the hall. The nurse opened the door and lead me to a small room.


A man sat in a chair with a portable laptop and what appeared to be a file. My file. “Sarah?”, he asked. “Yes, that’s me.”


“Have a seat”, he said. He opened my file. “I like your shoes. Ruby Red slippers. My daughter would love them. So what happened? How did you end up here?”


I told him about the meeting with the therapist, the ambulance ride, the urges to bash my head into the footboard of the bed.


“And your diagnosis says bipolar? Can you emphasize on that a little bit?”


“Well,” I said, “I have my lows. That’s pretty obvious. I get suicidal a lot. I usually fight it off, but this time I couldn’t. But I also have these highs. It feels like intermittent ADHD. I get really creative and hyper. I get so hyper. My legs bounce and I start jumping up and down. I can’t sleep for days. Once I decided to start a business. Another time I decided to write a book. I became devoted to those projects. I barely ate. I didn’t sleep. And then after a few days, I crashed back down into depression. These highs feel like I have butterflies under my skin. Like I just can’t calm down. I just can’t settle down.”


The doctor nodded and said “Type II then? That’s certainly what it sounds like.”


We discussed my medications, he added a new one, upped the dosage of another, and the frequency of another. Then the appointment was over and I was lead back to my room. But I was still wearing the hospital gown.


I went to the desk at the front of the hall and spoke through the small slit in the window.


“Excuse me,” I said. “My clothes were sent to laundry yesterday morning and I still haven’t gotten them back yet. They were supposed to be in the dryer.”


A nurse with dark hair said she would go check. I went back to my room.


About 10 minutes later she arrived at my room with an armful of clothes. She handed them to me but I didn’t take them. “These aren’t mine”, I said. “These are men’s clothes.”


“Oh”, she said. “What did yours look like?” She asked. I described them again.


“Oh my gosh.” She said and shook her head. “This is ridiculous. Your clothes have to be around here somewhere.”


I laid back on the bed. “Group time! Group!” A nurse called down the hall, so I stood up and went back into the day room where we discussed the symptoms of depression and why suicide is not the answer. I returned to my room afterwards.


A nurse came into the room, “Sarah, did your shirt have a print on it?” Puzzled, I answered “Yes, unicorns.” The nurse shook her head. “Okay, I’m going to need you to come with me.” I followed her through the locked doors and into the other wing of the floor. We passed by a few rooms and then we stopped at a room. The door was ajar.


“Loretta,” the nurse said. “Those are not your clothes.”


A middle aged woman with wiry hair and glazed over eyes stood wearing my two shirts I was missing and my sweater.


“But ya’ll owe me a pair of pants.” Loretta said and placed her hands on her hips.


The nurse sighed. “Loretta, those are not your clothes. Those are Sarah’s clothes. Please take them off.”


“Well ya’ll owe me pants!” She shouted as we left her room. The nurse said she would rewash my clothes and then hopefully, return them to me.


The days melted together. I got my clothes back. I saw the doctor three times. I talked to the nurses and I joined in the groups more. I started to go down with everyone else to the cafeteria for breakfast lunch and dinner. I slowly started to laugh at jokes. I started to read a book. I started to color in a coloring book.


A few days in, I was comfortably sitting in a chair in the hall reading a book I was 300 pages into when a new patient walked in. She wore a hospital gown. Her head was down. Her hair was chaotic. Her face was streaming with tears. Her eyes were glazed over.


I knew her.


She was me.


I had been her when I first came in. I had hated the laughter. I had hated the girl sitting in the hall casually reading a book as if nothing catastrophic had just happened. I had wanted to scream too.


I didn’t make eye contact. I didn’t even say hello because I know that she wouldn’t have wanted me to. I wouldn’t have wanted that.


After a few days, she came out of her room and joined the groups, just like I had. She showered and put on her clothes. She laughed. She ate. She healed.


She healed just like I had.


When I was finally released, I stepped outside the doors and into the fresh air for the first time in what felt like years.


I cried. The cold wind touched my face and I cried because I missed the wind. And the trees. And the rain. And the dirt. And the clouds. I had healed.


I don’t know if I ever will go back there, and statistically I probably will, but I know that without the help of my therapists, the nurses, the doctors and others, I would have killed myself and I would have never felt the wind on my face again. Ever again.